Saturday, April 29, 2017

Tony's daughter, Jessica, has a wide and caring sensibility. Even though Tony is her father and carries the gene for Machado Joseph Disease, she has empathy and compassion to listen how living or sitting, or laying in bed next to this disease turns a screw in me. Jessica says there are so many people in her family with the disease it is something that has always touched her. I hope that is the only way it ever touches her. What a blessing to be honest and speak form words, take them back, and restate them in another way to someone not in a hurry, not afraid of the sadness, the way it twists and turns you. It was a gift to spend the week with Jessica. And we all loved Patsey the DD goat, Rick, Jessica, Makaila and Nick. Patsey was carted around front legs dangling. She was hugged and held. They woke up thinking of her. Today was a 7.5 on Patsey's scale. She is drinking better from the bottle. She nurses, she takes some drinks from the bottle, goes back to nursing and finishes with the bottle. She never tries the grass, the hay, the grain. I push dandelion flowers in her mouth. The yellow disappears, she spits it out mottled, I push it back. One day at a time, no solutions, just hope this is a good day.

No comments:

Post a Comment